Kuttenberger, J. and Ohmer, J. N. and Polska, E.. (2010) Initial counselling for cleft lip and palate : parents' evaluation, needs and expectations. International journal of oral and maxillofacial surgery, Vol. 39, H. 3. pp. 214-220.
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Official URL: http://edoc.unibas.ch/dok/A6004105
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Abstract
During the first counselling after the birth of a child with cleft lip and palate (CLP) information about the malformation should be delivered and a long-standing relationship between the cleft team and the affected family must be established. The present study was conducted to evaluate the parents' experiences, needs and expectations with this first consultation. A questionnaire was sent to 105 parents at the cleft clinic, which could be answered anonymously. It collected demographic data, data on the parents' pre-existing level of information and the parents' assessment of the counselling at the cleft centre. Seventy percent of the questionnaires were returned. In 16% the clefts were diagnosed prenatally, in 32% there were relatives with clefts. Seventy-one percent of the parents received detailed counselling, 89% of which occurred in the first week. The parents requested that information about surgery (80%), feeding the child (63%) and the aetiology of clefts (44%) should be given. The quality of the consultation was rated very good or good by 87% of families. This study confirms the importance of initial counselling for CLP. The exceptional psychological situation of the family has to be considered and a close collaboration between cleft centre and maternity hospitals is mandatory.
Faculties and Departments: | 03 Faculty of Medicine > Bereich Operative Fächer (Klinik) > Ehemalige Einheiten Operative Fächer (Klinik) > Kiefer- und Gesichtschirurgie (Zeilhofer) 03 Faculty of Medicine > Departement Klinische Forschung > Bereich Operative Fächer (Klinik) > Ehemalige Einheiten Operative Fächer (Klinik) > Kiefer- und Gesichtschirurgie (Zeilhofer) |
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UniBasel Contributors: | Kuttenberger, Johannes Josef |
Item Type: | Article, refereed |
Article Subtype: | Research Article |
Publisher: | Churchill Livingstone |
ISSN: | 0901-5027 |
Note: | Publication type according to Uni Basel Research Database: Journal article |
Identification Number: | |
Last Modified: | 26 Apr 2013 07:02 |
Deposited On: | 26 Apr 2013 06:57 |
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